We have clear aims at Abbie's Army and quite simply put, the more funding and donations we receive the MORE we can do to fund vital DIPG research and raise awareness!
Abbie's Army regrettably cannot provide families support with proceeds towards an individual crowd funding platform for medical treatment. This does not comply with our Trust aims for public benefit.
There is difficulty for us to provide a formal grant application procedure quite simply because we do not have a sufficient sustainable income stream to provide grants on a regular funding cycle. We are solely dependent on voluntary donations.
Therefore at Abbie's Army we are keeping constantly updated on the latest developments both in the research field and regarding clinical therapies, then actively approaching those who we consider best placed to provide the most innovative and helpful project. Those who we want to work with, either to commission the research we would like to see or to provide the pre-clinical data needed to inform treatment options with a very clear clinical path.
These decisions are ultimately made after taking advice from our own small scientific and medical advisory panel, or as in the case of grants already awarded via the 'DIPG Collaborative' - where each project has passed through a stringent 'peer review' procedure using their own established Medical Advisory Council.
We only wish we could do so much more.