Treatment in Zurich - PNOC Trials
This is relatively new founded early in 2019 , as an extension into Europe for the US trials group PNOC (Pacific Pediatric Neuro-Oncology Consortium) trials. https://www.pnoc.us/
Situated in the University Children’s Hospital of Zurich (Kinderspital), it is one of the most well respected and highly rated paediatric hospitals in Europe.
The centre and full establishment of some available trials may provide a specific DIPG treatment program within the hospital which will operate fully within all the regulatory requirements and provide greater accessibility to progressive options for new UK patients. Additional PNOC centres are also open at the Princes Maxima Hospital in Utrecht, Netherlands
Key personnel including world renown DIPG researchers and oncologists are leading the program. (Sabine Mueller (PNOC lead and peadiatric oncology lead at UCSF) and Javad Nazarian - PI at Children's National, Washington)
They can be contacted in Switzerland the first instance on the following email [email protected]
There are fees associated for appointments and consultancies and any subsequent treatment plan and routine tests required.
This currently 'self-pay' basis is likely to be at considerable expense. It is unlikely (initially) that any suggested procedures will be covered on insurance for overseas patients whilst 'unapproved' and without any involvement with the trials platform from UK clinicians.
Clinical trials should always supply the drug tested freely to the patient, associated costs and hospital fees, travel and accommodation are all additional at the prevailing country health care rates.
More information on the Zurich team can be found here : https://dipgcenter.ch/
