Treatment in Zurich - PNOC Trials
This is relatively new founded early in 2019 , as an extension into Europe for PNOC (Pacific Pediatric Neuro-Oncology Consortium) trials. https://www.pnoc.us/
Situated in the University Children’s Hospital of Zurich (Kinderspital), it is one of the most well respected and highly rated paediatric hospitals in Europe.
The centre is still finding it's feet and full establishment, with programs in development but may provide a specific DIPG treatment program within the hospital which will operate fully within all the regulatory requirements and provide greater accessibility to progressive options for new UK patients.
Key personnel including world renown DIPG researchers and oncologists are leading the program. (Sabine Mueller (PNOC lead and peadiatric oncology lead at UCSF) and Javad Nazarian - PI at Children's National, Washington)
They can be contacted in the first instance on the following email firstname.lastname@example.org
We have some of the initial costs established to reach out to representatives and currently there will be fees associated for follow up appointments and consultancies for any subsequent treatment plan and routine tests required.
This currently based on 'compassionate' or 'self-pay' basis including possible surgery and out patient visits with travel which will likely to be at considerable expense. It is unlikely (initially) that any of the suggested procedures will be covered either by the NHS on a 'clinical trial' basis or available on insurance for overseas patients whilst 'unapproved'
Clinical trials 'in development' should always supply the drug tested freely to the patient, associated costs and hospital fees, travel and accommodation are all additional.
More information on the Zurich team can be found here : https://dipgcenter.ch/