'Abbie's Army' is a children's DIPG (Diffuse Intrinsic Pontine Glioma) brain tumour research charity, founded in loving memory of Abbie.
Our mission is to :
- Raise awareness and funding for DIPG research and help overturn this 'terminal' prognosis.
- Provide a useful resource , practical advice and support for other parents who receive this horrendous diagnosis for their child.
There are over 120 different known types of brain cancer. DIPG or 'Diffuse Intrinsic Pontine Glioma' is the most fatal of all these brain cancer types. DIPG grows in the PONS area of the brainstem making surgery impossible. Currently there are no approved or validated 'data driven' effective treatments or a CURE available. The average survival time from diagnosis remains at just 9 months.
Abbie passed away only FIVE months after her DIPG diagnosis. Can YOU imagine?... This most fatal cancer with no treatment plan?...Abbie did not receive one drug following her diagnosis.
The current situation facing children with DIPG is UNACCEPTABLE! ...and cannot be allowed to continue.
DIPG is affecting roughly 40 children a year in the UK and with insufficient research funding from larger National charities and no direct Government funding, it is parent led charities and advocacy groups worldwide who are contributing to furthering the research effort.
It may be too late for so many families, but we can all commit to helping the DIPG families of the future. With first hand knowledge and experience of the devastation DIPG causes, we know any donation that can aid research and development of new clinical treatments to benefit these children is invaluable.
After decades of despair only the investment to find a cure will provide the hope needed for these future families.
Our vision is a world where there is a CURE for every child diagnosed with DIPG.
Are you ready to join us?....