Abbie's Army are committed to raising funds and commissioning or contributing to high quality and innovative medical research to find a cure for DIPG. Our criteria for funding research include that any project be;
- Targeted - exploring biologically relevant areas of discovery interest in a complimentary manner
- Innovative - extends existing knowledge and contributes to combinational approaches including modalities
- Medically progressive - Translational with clear path to informing treatment options and future clinical trials
- Outputs to be available and relevant to all patients.
- Delivered with interim review reporting and with defined end date targets enabling Trustees to understand better the impact of the charity’s funding in research progression.
- Grant recipients should always maximise the availability of research 'data' derived from the Grant to others with as few restrictions as possible.
All research investment decisions are ultimately made in consultation with our own specialist scientific and medical advisory panel.
Abbie's Army positively welcomes the opportunity to combine efforts with other charities and fundraising groups to make a wider impact.
Finding a cure through funding vital research
There are currently very few treatments showing any efficacy (scientifically documented and proven) and NO cure available for DIPG
Funding targeted research initiatives enables doctors to improve their understanding of how DIPG develops and progresses, this is the only way to lead development of effective treatment options to benefit ALL children affected by DIPG.
We must not give up!
It is imperative that we keep fighting to provide hope to DIPG families of the future and end decades of despair
Since 2011 , scientists have made great progress, with an active research field the advances in biological understanding of the disease are significant, and informing new designs of clinical trial much nearer. NOW is the time to see these new discoveries translated into much clearer .much needed clinical benefits for all affected children...
New discoveries together with new technologies for the first time are dramatically improving the possibility and potential of new routes for tackling DIPG disease that were never previously available.
At Abbie's Army we are keeping constantly updated on developments both in the research field and regarding clinical therapies and then actively approaching those who we consider best placed to provide the most innovative and helpful project. Those who we want to work with, either to commission the research we would like to see or to provide the pre-clinical data needed to inform treatment options with a clear clinical path.
Research funding from Government and National charities in this area however remains tiny and completely insufficient compared with other cancers.
We must change this whilst the potential for making huge and rapid advances in this area is enormous.
ONLY by investing in this research now, can cure ultimately follow.
Brain tumours kill more children and adults under the age of 40 than any other cancer... yet just 1% of the national spend on cancer research has been allocated to this devastating disease. (Brain Tumour Research)
We know just how important it is to raise awareness – without awareness there is no money, without money there is no research, and without research there will be no cure!
This is indeed a cyclical process and we cannot fight something in the first instance if no one knows what it is!
Abbie's Army, organises its own fundraising events as well as working as closely as possible with all its supporters to provide all they need to raise the profile of DIPG and spread much needed awareness.