Latest Charity News & Campaigning

A page for the latest news and developments in our fundraising activities for DIPG research ....


Mirror Article for DIPG Awareness

Our recent feature appealing for DIPG awareness reached thousands of people...
A HUGE thank you to Sophie Jane Evans, Chief Mirror Reporter who was extremely passionate in wanting to help us increase much-needed public support and research funding as soon as possible.
Our heartfelt thanks also to the families involved here who allowed us to show their children and united with us to get these children the attention they deserve... 

Anti-GD2 CAR-T data Published

A NEW paper was published today (15th April) in the Journal Nature Medicine from the Monje lab at Stanford University.

'Potent antitumour efficacy of anti-GD2 CAR-T cells in H3 K27M+ diffuse midline gliomas' Funding was contributed by numerous family led foundations including Abbie's Army.

The 'data' is incredible for this new promising immunotherapeutic 'CAR-T cell' approach for DIPG and other diffuse midline tumours. The disease even in the most robust model was eradicated, (do take a look at the luminescence imaging of the models included)
Abbie's Army with your support funded some of the GD2 specificity experiments required to enable publishing on this paper.
Clinical trial are planned for Spring 2019 safety will be so important given the precarious nature of the tumour site, monitoring and intensive care of neuroinflammation will be required, but a 'cautious multidisciplinary clinical approach' could prove 'transformative' for patients.
Incredible work, which we are so very proud to support from Michelle Monje-Deisseroth Crystal Mackall and the Stanford team.


A hugely informative and as always inspiring visit on March 14th with Prof Chris Jones and the glioma team at The Institute of Cancer Research
With YOUR support Abbie's Army have now funded the processing, sequencing and modelling of ALL 16 UK patients currently enrolled on the BIOMEDE trial for DIPG.

Latest Grant Funding Award

The Trustees of Abbie's Army have announced their latest project, commencing immediately and running for two years an award of $270,000 has been agreed with Stanford University, California, USA.

Entitled 'Towards a multi-pronged approach for DIPG therapy: targeting BDNF-TrkB signalling in the DIPG microenvironment' this also includes some specificity experiments with CAR T cell therapy in DIPG.

Please see our 'Research Funded To Date' section for more details

Co-op Community Fund Total

The total funds raised by Co-op Members for Abbie's Army  is £3349.40!

We want to say a big THANK YOU to Co-op Members.

To everyone who donated their 1% membership during our selection you have made a massive difference this will go towards our funding of individual patient models of DIPG disease for children enroled on the BIOMEDE trial in the UK. We are so grateful for the support.

NEW DIPG PETITION - Requires Action

Abbie's Army are supporting and pushing with the UK DIPG community a new petition on Government for increased funding into DIPG research. YOU can help by simply adding your signature to this Petition - 100,000 signatures are needed to secure a Parliamentary debate.

If you are affected you can help also by lobbying your own MP and gaining their interest. You can DOWNLOAD our template letter here. Just add how you are affected or why you are writing so that as many DIPG stories as possible are represented, it also requests their representation of 'you', their constituent, should the debate reach Parliament,


If you have not yet signed the petition you can CLICK on the header banner on our 'Home' page or add your signature on this link : 

September 2017 - Childhood Cancer Awareness Month

Every September in the UK is now  a 'Childhood Cancer Awareness Month' an opportunity to put advocacy for increased research into treating childhood cancer under the spotlight. We have to highlight the impact of cancer and DIPG specifically on children and their families to gain the attention they deserve.

You can help by selling our 'Gold Ribbon Awareness' badges - these are available individually for just £1.50 plus postage from our shop via Ebay. Alternatively if you can take one of our counter top boxes for your workplace, shop, club or school please do get in touch and we will send one out to you.

Wear a badge this September and honour all those currently fighting, those gone too soon and those little fighters of the future who will be facing big battles.

Finlay's Fighters Smash Swim Challenge

A team of 15 from 'Finlay's Fighters' completed their swim challenge across Sheephaven Bay, Donegal on Saturday 5th August. Finlay Marriott was a very brave boy who lost his year long battle with DIPG in January 2014.

The family have been such wonderful supporters of our charity and DIPG research with numerous 'challenge' type events, this latest one has raised over £17,000 so far! Incredible...well done and thank you to all at Finlay's Fighters especially Finlay's parents Judith and Chris.

Mark Saggers Becomes Ambassador July 2017

We're absolutely thrilled to announce that we have our VERY FIRST 'Abbie's Army Ambassador' in the shape of Mr Mark Saggers!
A radio presenter with an extensive broadcasting career he is truly one of the most recognised and respected voices in the world of sport. 
Mark can be found today on talkSPORT and is also in demand as a conference host across the UK, Europe and in the USA.
We were very grateful for his excellent hosting of our inaugural 'Discovery Ball' event last October, where more than £30,000 was raised towards our DIPG research.
Such a wonderful champion of our charity and DIPG children, we are so very honoured to have his support.

GoMobile Golf Day Raises Over £4000

On Friday 30th June 100 golfers took to the course at Hunley Hotel & Golf Club, Saltburn-by-the-Sea and raised a FANTASTIC £4110 for our DIPG research projects!

Organised by Anthony Armstrong, teams went against each other in really poor conditions and persevered to support the cause.

We are so grateful to those who provided fantastic prizes for the  raffle and auction and those who sponsored tee box signage on the course.

Well done to all who took part in the day and made it such a success!

Coop - Local Community Fund - June 2017

Coop - Local Community Fund - June 2017

Are you a Coop Member?

Abbie's Army has been selected as a local cause for support but you can be anywhere in the UK to nominate us!

This is running for SIX months so will take us right up to Christmas, so there is plenty of time to get involved.

It costs just £1 to join and you will instantly begin to save 5% in your membership account to redeem against Co-op products. By nominating Abbie's Army, 1% of you spend will be donated for us to put towards vital DIPG rseearch.

This is the direct link you need to use to nominate us : 

Read more

Fundraising at Homewood, Tenterden

Great to catch up with those involved with fundraising at Homewood School & Sixth Form Centre in Tenterden.

With huge thanks to Karen Adams, Maxine Smith and the Head Mrs Lees and just some of the Enterprise students we collected a fabulous cheque for £2329.44!

This was raised with a concert evening, cake sale and non-uniform day, the most ever raised for one of their supported charities too!
We are so very grateful for your support for DIPG research...'Thank You' to all at Homewood who kindly took part and donated.

Abbie's Army In Parliament

Abbie's Army accompanied Brain Tumour Research on a follow-up visit to Parliament to hear some of the progress being made by the Working Group instigated when the HoC Petition went through last April.

For more updates on the status of this please visit

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Waitrose Community Charity June 2017

If you are local to Ashford and shop in Waitrose, please consider putting your green 'Community Matters' token in the Abbie's Army box. 
We're one of their chosen charities this month!

The Telegraph Feature

Daughter's tragedy that may lead to cure for a childhood killer

A feature from September 'Childhood Cancer Awareness Month' 2015, in the Telegraph regarding our fundraising for DIPG 

ICR Feature Abbie's Army

Abbie's Army

Abbie Mifsud was only six years old when she died of diffuse intrinsic pontine glioma (DIPG) — an inoperable and incurable cancer in her brainstem. DIPG is an extremely aggressive cancer which currently has no effective treatment options. She passed away just five months after her diagnosis.'s-army-helps-support-research-into-dipg

More coverage at The Institute of Cancer Research

Parent-led charities and their inspirational support for the ICR’s child cancer research

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