A page for the latest news and developments in our fundraising activities for DIPG research ....
A page for the latest news and developments in our fundraising activities for DIPG research ....
Abbie's Army have provided funding for the sequencing and 'avatar' modelling of another SEVEN DIPG biopsy samples at The Institute of Cancer Research
Since our last award in March these samples represent another seven children now enrolled on the BIOMEDE trial.
This brings the total now covered with YOUR support to 23 patients.
Replica individual DIPG tumours are re-created from the smallest tissue samples provided, it is truly amazing and incredibly difficult work
These can be drug screened and monitored for speed of DIPG invasion, drug uptake and growth which is adding to predictability studies of particular molecular sub-types.
In a percentage of cases other actionable target mutations can be identified to receive additional therapy at relapse.
Realising there are another seven families now experiencing the harsh reality of DIPG , should reinforce in all of us the need to support research acceleration and provide more options for these children, who have the greatest odds stacked against them and no cure.
Only by funding targeted research initiatives will we enable doctors to improve their understanding of how DIPG develops and progresses and lead the development of those effective treatment options that are so needed to benefit all DIPG children.
Get involved with the latest challenge that is raising awareness and funding for DIPG research!
The #LemonFaceChallenge was started in the USA by 11-year-old Aubreigh Nicholas, who was diagnosed with DIPG in September. Her charity,Aubreigh's Army has already raised more than $40,000 at the time of this writing thanks to lots of help from the US sports world. Can we make this go viral and work in the UK?!!!
YOU can help us! It's so simple all you have to do is grab yourself a lemon , video your #LemonFace and upload to social media, nominate others to do the same and if you can, please make a small donation for DIPG research!
Remembering why DIPG is so sour!
A 9 month life expectancy
A virtually ZERO % survival
NO surgery NO effective proven therapies.
Underfunded research and cause UNKNOWN
NO change in prognosis for decades.
EVERY PENNY will go towards research advancing the understanding of DIPG disease, investigating therapeutic targets and informing treatment for these young patients.
Please TEXT LEMO40 (for the 40 UK kids diagnosed with DIPG each year) and your £ amount to 70070
You must be contracted to a UK mobile phone operator to use 'Just TextGiving'...if overseas you can still donate directly to our JustGiving page at https://www.justgiving.com/abbies-army Thank You.
A hugely informative and as always inspiring visit on March 14th with Prof Chris Jones and the glioma team at The Institute of Cancer Research
With YOUR support Abbie's Army have now funded the processing, sequencing and modelling of ALL 16 UK patients currently enrolled on the BIOMEDE trial for DIPG.
Thanks to an anonymous and generous donor, children’s cancer charities including Abbie's Army have benefited from the sale of a valuable sculpture. Called ‘The Boy with a Dolphin’ by David Wynne it was auctioned recently at Christie’s for an amazing £80,000! The full size statue is situated on Chelsea’s Cheyne Walk opposite the approach to Albert Bridge
The money will be split between our charity and other great causes Solving Kids Cancer, Chelsea’s Angels and Alice’s Escapes.
We are hugely grateful for this immensely kind donation which will help us support the funding of vital DIPG research.
A NEW paper was published today (15th April) in the Journal Nature Medicine from the Monje lab at Stanford University.
'Potent antitumour efficacy of anti-GD2 CAR-T cells in H3 K27M+ diffuse midline gliomas' Funding was contributed by numerous family led foundations including Abbie's Army.
The 'data' is incredible for this new promising immunotherapeutic 'CAR-T cell' approach for DIPG and other diffuse midline tumours. The disease even in the most robust model was eradicated, (do take a look at the luminescence imaging of the models included)
Abbie's Army with your support funded some of the GD2 specificity experiments required to enable publishing on this paper.
Clinical trial are planned for Spring 2019 safety will be so important given the precarious nature of the tumour site, monitoring and intensive care of neuroinflammation will be required, but a 'cautious multidisciplinary clinical approach' could prove 'transformative' for patients.
Incredible work, which we are so very proud to support from Michelle Monje-Deisseroth Crystal Mackall and the Stanford team.
The Trustees of Abbie's Army have announced their latest project, commencing immediately and running for two years an award of $270,000 has been agreed with Stanford University, California, USA.
Entitled 'Towards a multi-pronged approach for DIPG therapy: targeting BDNF-TrkB signalling in the DIPG microenvironment' this also includes some specificity experiments with CAR T cell therapy in DIPG.
Please see our 'Research Funded To Date' section for more details
Our recent feature appealing for DIPG awareness reached thousands of people...
A HUGE thank you to Sophie Jane Evans, Chief Mirror Reporter who was extremely passionate in wanting to help us increase much-needed public support and research funding as soon as possible.
Our heartfelt thanks also to the families involved here who allowed us to show their children and united with us to get these children the attention they deserve...
The total funds raised by Co-op Members for Abbie's Army is £3349.40!
We want to say a big THANK YOU to Co-op Members.
To everyone who donated their 1% membership during our selection you have made a massive difference this will go towards our funding of individual patient models of DIPG disease for children enroled on the BIOMEDE trial in the UK. We are so grateful for the support.
Abbie's Army are supporting and pushing with the UK DIPG community a new petition on Government for increased funding into DIPG research. YOU can help by simply adding your signature to this Petition - 100,000 signatures are needed to secure a Parliamentary debate.
If you are affected you can help also by lobbying your own MP and gaining their interest. You can DOWNLOAD our template letter here. Just add how you are affected or why you are writing so that as many DIPG stories as possible are represented, it also requests their representation of 'you', their constituent, should the debate reach Parliament,
If you have not yet signed the petition you can CLICK on the header banner on our 'Home' page or add your signature on this link :
Every September in the UK is now a 'Childhood Cancer Awareness Month' an opportunity to put advocacy for increased research into treating childhood cancer under the spotlight. We have to highlight the impact of cancer and DIPG specifically on children and their families to gain the attention they deserve.
You can help by selling our 'Gold Ribbon Awareness' badges - these are available individually for just £1.50 plus postage from our shop via Ebay. Alternatively if you can take one of our counter top boxes for your workplace, shop, club or school please do get in touch and we will send one out to you.
Wear a badge this September and honour all those currently fighting, those gone too soon and those little fighters of the future who will be facing big battles. http://www.ebay.co.uk/itm/152364354636?ssPageName=STRK:MESELX:IT&_trksid=p3984.m1555.l2649
A team of 15 from 'Finlay's Fighters' completed their swim challenge across Sheephaven Bay, Donegal on Saturday 5th August. Finlay Marriott was a very brave boy who lost his year long battle with DIPG in January 2014.
The family have been such wonderful supporters of our charity and DIPG research with numerous 'challenge' type events, this latest one has raised over £17,000 so far! Incredible...well done and thank you to all at Finlay's Fighters especially Finlay's parents Judith and Chris.
We're absolutely thrilled to announce that we have our VERY FIRST 'Abbie's Army Ambassador' in the shape of Mr Mark Saggers!
A radio presenter with an extensive broadcasting career he is truly one of the most recognised and respected voices in the world of sport.
Mark can be found today on talkSPORT and is also in demand as a conference host across the UK, Europe and in the USA.
We were very grateful for his excellent hosting of our inaugural 'Discovery Ball' event last October, where more than £30,000 was raised towards our DIPG research.
Such a wonderful champion of our charity and DIPG children, we are so very honoured to have his support.
On Friday 30th June 100 golfers took to the course at Hunley Hotel & Golf Club, Saltburn-by-the-Sea and raised a FANTASTIC £4110 for our DIPG research projects!
Organised by Anthony Armstrong, teams went against each other in really poor conditions and persevered to support the cause.
We are so grateful to those who provided fantastic prizes for the raffle and auction and those who sponsored tee box signage on the course.
Well done to all who took part in the day and made it such a success!
Are you a Coop Member?
Abbie's Army has been selected as a local cause for support but you can be anywhere in the UK to nominate us!
This is running for SIX months so will take us right up to Christmas, so there is plenty of time to get involved.
It costs just £1 to join and you will instantly begin to save 5% in your membership account to redeem against Co-op products. By nominating Abbie's Army, 1% of you spend will be donated for us to put towards vital DIPG rseearch.
This is the direct link you need to use to nominate us : https://membership.coop.co.uk/causes/8888
Great to catch up with those involved with fundraising at Homewood School & Sixth Form Centre in Tenterden.
With huge thanks to Karen Adams, Maxine Smith and the Head Mrs Lees and just some of the Enterprise students we collected a fabulous cheque for £2329.44!
This was raised with a concert evening, cake sale and non-uniform day, the most ever raised for one of their supported charities too!
We are so very grateful for your support for DIPG research...'Thank You' to all at Homewood who kindly took part and donated.
Abbie's Army accompanied Brain Tumour Research on a follow-up visit to Parliament to hear some of the progress being made by the Working Group instigated when the HoC Petition went through last April.
For more updates on the status of this please visit https://www.braintumourresearch.org/Back to top
A feature from September 'Childhood Cancer Awareness Month' 2015, in the Telegraph regarding our fundraising for DIPG
Abbie Mifsud was only six years old when she died of diffuse intrinsic pontine glioma (DIPG) — an inoperable and incurable cancer in her brainstem. DIPG is an extremely aggressive cancer which currently has no effective treatment options. She passed away just five months after her diagnosis.
More coverage at The Institute of Cancer Research :