UK Government Petition 2020

 YOU DID IT...!!!

On July 2nd thanks to a fantastic amount of online support from Prof Karol Sikora and his supporters (among others), the DIPG community and various charities, the current Petition started by Fiona Govan gained the threshold number of 100,000 signatures. It has been considered by the Petitions Committee, and will now GO FORWARD for debate in Westminster Hall.

There is quite likely to be some delay as schedules are disrupted with a back log of issues now requiring Government time and attention post Covid-19. MP's are not currently sitting in Westminster Hall where debates would normally take place.

HOWEVER, this gives ample time to gather all the relevant information for a strong argument including all stakeholders, Public and Patient (PPI) involvement, the views of associated charities and key scientific expert research input  from disease specialties around what is needed.

Time too for us all to contact and lobby our own MP's for support and representation at any future debate and explain why this result is personally important to each and every one of us. The subject of 'brain tumour research' has of course been previously debated (2016) and references were included in the previous response (at 10,000 signatures).

This petition is not solely for DIPG or brain cancer research, neither is it centered on improving policy for all. This petition is to ensure that CHILDREN with the worst outcomes from the most 'difficult to treat' cancers, often with completely different biology to adult disease have the full attention, investigation and opportunities needed in regard to research processes, that may lead to better outcomes.

If you do contact your MP please do let us know and we can keep a log of all the relevant constituencies that have been notified. Thank you

DOWNLOAD a template letter to gain support from your MP: petition_lobbymp_letter__2020_yPPpTky.doc

At the last debate on acceptance the Petitions Committee sought 'public engagement' and so we hope if the same should be required, that many DIPG families will come forward with their own personal accounts.

These can also be high-lighted now on our 'Meet the Children' page if you would like to add your story