Open Letter for families affected by DMG/DIPG
Prior to receiving a date for the petition debate post recess due to be scheduled, we are calling on all UK families affected by DMG/DIPG to join together and sign an open letter to the Secretary of State for Health and Social Care, the Rt Hon Matt Hancock MP.
Past or present and new to the fight, every voice matters.
Please message firstname.lastname@example.org or if you see a post, privately through social media channels if you are happy to be added as a family signatory to this letter. We only require one submission per child.
Please provide your details if possible by the end of August for submission.
Please include the following:
- How you would like to be listed shown on the signatory page.
- The name of your child/grandchild.
- Their age at time of their passing or whether they are currently still fighting.
It is most important that we show a groundswell of support from all over the country and that it is not just a small push from a few individuals. If you know of other families that are not active on social media please pass the information to them also.
As a group of families, (completely independent of charity) we can also copy this to the Petitions Committee and other relevant Ministers.
We will also be using the letter after month end to send to various 'have your say' media news contacts and 'Letters to Editor' type online publications.
Anyone with any other ideas for spreading the word please reach out, either here or directly to the Petitioner, Fiona Govan.
You can download and read the FULL copy of the letter here: dhsc-opendipg.doc
Thank you for your support.