Abbie's Army has been formed in loving memory of Abbie Mifsud by her family. She was a remarkable daughter and brave little girl who on September 13th 2011, at only 6 years of age lost her fight with an inoperable and incurable (DIPG) brain tumour.
This is the MOST FATAL form of childhood brain cancer growing in the brainstem making surgery impossible. 'Terminal at diagnosis' there is NO treatment or CURE. The only standard UK treatment is 6 weeks of palliative radiotherapy to relieve symptoms before the tumour returns more agressively. The median survival is just 8-12 months.
Abbie passed away only 5 months after her initial diagnosis. Can you imagine? the most fatal cancer with the least to be done?...
Our mission now is to RAISE awareness and contribute much needed funds for children's DIPG brain tumour research which is currently woefully underfunded. DIPG affects 40 children a year in the UK with most funding coming from the parent led charities who have all lost a child to the disease. It may be too late to help our beautiful girl but we can all commit to helping the DIPG families of the future.
ANY donation that can aid research and the development of new treatments for these children, who currently have NONE that are proven effective, is extremely worthwhile. These children are waiting for science , but they do not have the luxury of time. Only investment to find a cure will provide the hope they need and give them a future.
EVERY 9 DAYS A CHILD IN THE UK IS DIAGNOSED WITH DIPG.
From LOSS there is HOPE and INSPIRATION.
1 CHILD DIES EVERY 3 DAYS FROM A BRAIN TUMOUR IN THE UK.
Charity Registration 1149400. (Reg Oct 2012)
Christmas at The Reindeer Centre - Fri 12th December
ONLINE Booking is now OPEN!!
Come and visit Santa and his Elves, feed the reindeer, see Elsa and Olaf from 'Frozen' plus lots of other festive fun.
For our exclusive Christmas event not to be missed at The Reindeer Centre, Bethesden, Nr Ashford
NEW!! - DIPG Collaborative funding award $105,325
We have just awarded a further grant to the DIPG Collaborative of $105,325 covering further study taking place with Dr Chris Jones at the Institute of Cancer Research, Sutton UK - 'The Evolutionary Dynamics of DIPG'
A full link to the paper can be read here ..
Dr Maria Vinci is also working on the project as part of Chris's team, she was also directly involved in the study published earlier this year in the journal , Nature Genetics 'Recurrent activating ACVR1/ALK2 mutations in diffuse intrinsic pontine glioma'.
Abbies Army were extremely proud to be cited earlier this year by the Institute of Cancer Research for our previous funding award. Researchers published a paper in the journal 'Nature Genetics' which revealed a key genetic driver of the disease for the first time. The mutation of the ACVR1 gene was identified in around 25% of all DIPG cases and is promising because it throws open the option of a druggable target. Please read the full ICR release here on their website:
The Collaborative has invested in a further funding round of $325,000 of new research grants selected by its Medical Advisory Council which allows for streamlined research, transparency and limits duplication. The combined effects of these funds are inspiring! Visit www.dipg.org for more information!
Abbie's Army Fundraising Totals Donated
Abbie's Army has raised the following amounts for our chosen research centres.... (Abbies Army funding to ICR and DIPG Collaborative)
MORE than £350,000 has be raised to date! THANK YOU ALL
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