Abbie's Army is children's DIPG brain tumour research charity, formed in loving memory of Abbie Mifsud. She was a beautiful daughter and brave little girl who lost her fight with an inoperable and incurable (DIPG) brain tumour on September 13th, 2011. She was just 6 years old.
DIPG or 'Diffuse Intrinsic Pontine Glioma' is the MOST FATAL form of childhood brain cancer which grows in the PONS area of the brainstem making surgery impossible. Currently there are NO effective treatments or a cure available. The average survival time from diagnosis is just 9 months.
Abbie passed away 5 months after her DIPG diagnosis. Can YOU imagine? the most fatal cancer with the least to be done?...
The situation for DIPG kids is UNACCEPTABLE.
Our mission is to RAISE awareness and contribute funding for DIPG research. DIPG affects 40 children a year in the UK with no direct Government funding, all research is supported by the parent led charities who have all lost a child to the disease. It may be too late to help our beautiful daughter but we can all commit to helping the DIPG families of the future.
ANY donation that can aid research and development of new treatments for these children, who currently have NO options, is extremely worthwhile. After decades of despair for parents with a steady stream of patients, only the investment to find a cure will provide the hope needed for DIPG kids in the future.
EVERY 9 DAYS A CHILD IN THE UK IS DIAGNOSED WITH DIPG.
1 CHILD DIES EVERY 3 DAYS FROM A BRAIN TUMOUR IN THE UK.
Charity Registration 1149400. (Reg Oct 2012)
Please make any cheques for 'Abbie's Army' or 'Finlay's Fighters' payable to Abbie's Army. Thank You.
ONLINE booking is now OPEN and recommended http://abbiesarmy.co.uk/reindeer2015
PLEASE SIGN THE PETITION
If you are a UK citizen you can add your name to the following petition. Established by Arif Ahmed who sadly lost his daughter Saira to DIPG earlier this year we are asking Government for specific DIPG grant funding.
This brain cancer presents unique challenges not relevant to other parts of the body which should be taken into consideration in awarding research funding...and whilst it may not seem high on a political agenda we would be eradicating 80% of ALL BRAIN TUMOUR DEATH IN CHILDREN
Please do add your name here https://petition.parliament.uk/petitions/111216
We went 'GOLD' for all children touched by cancer during this September. Those who have fought, those who are no longer here anymore and those who are yet to be diagnosed.
Our 'Child Killer' DIPG awareness film launched on September 13th you can watch it NOW by clicking on the link below. Please take just 5 mins to watch and DONATE if you can.
Text ARMY60 and your amount to 70070
|Child Killer||BBC News|
Please follow our social media feeds on Facebook and Twitter to support.
We have awarded a further grant on behalf of the DIPG Collaborative directly to the Institute of Cancer Research (ICR) to professor Chris Jones for £62,169 ($99,470)
This is to cover a second year of further study on 'The Evolutionary Dynamics of DIPG' a peer reviewed application approved by the medical advisory council.
This brings our total funding to the group to $240,000 since our inception as Foundational Leadership Partners in 2013.
With your amazing support this collaborative project between the research team based here at the University of Bristol, and Professor Oren Becher at Duke University, North Carolina in the US involves the pre-clinical testing of agents in four molecular pathways.
Success in CED will depend on matching the unparalleled world class technology in Bristol, with the most effective drugs. The identification of these drugs is the major focus of our research funding ‘Identifying novel drugs for the treatment of brainstem tumours by direct infusion into the brain'
Results from this study programme will inform future CED trials using this technology.
We have awarded a further grant to the DIPG Collaborative of $105,325 covering further study taking place with Dr Chris Jones at the Institute of Cancer Research, Sutton UK - 'The Evolutionary Dynamics of DIPG'
A full link to the paper can be read here ..
Dr Maria Vinci is also working on the project as part of Chris's team, she was also directly involved in the study published earlier this year in the journal , Nature Genetics 'Recurrent activating ACVR1/ALK2 mutations in diffuse intrinsic pontine glioma'.
Abbies Army were extremely proud to be cited by the Institute of Cancer Research for our previous funding award in 2014. Researchers published a paper in the journal 'Nature Genetics' which revealed a key genetic driver of the disease for the first time. The mutation of the ACVR1 gene was identified in around 25% of all DIPG cases and is promising because it throws open the option of a druggable target. Please read the full ICR release here on their website:
Abbie's Army has DONATED the following amounts for our chosen research centres...
Funding supplied to:
Institute of Cancer Research (ICR)
Bristol - Functional Neurosurgery Research Group
Buy your wristbands here
Abbie's Army - Fight Kids Brain Cancer - © 2012: Charity Reg: 1149400