Abbie's Army has been formed in loving memory of Abbie Mifsud. She was a remarkable daughter and brave little girl who lost her fight with an inoperable and incurable (DIPG) brain tumour on September 13th, 2011. She was just 6 years old.
This is the MOST FATAL form of childhood brain cancer which grows in the brainstem making surgery impossible. 'Terminal at diagnosis' currently there are NO treatments or CURE available. The only front line UK therapy in defence is 6 weeks of palliative radiotherapy, purely to relieve symptoms before the tumour returns more agressively. On progression there is a rapid decline. The average survival time from diagnosis is just 8-12 months.
Abbie passed away only 5 months after her DIPG diagnosis. Can you imagine? the most fatal cancer with the least to be done?...
Our mission is to RAISE awareness and contribute much needed funds for children's DIPG brain tumour research which is currently so woefully underfunded. DIPG affects 40 children a year in the UK with most funding coming from the parent led charities who have all lost a child to the disease. It may be too late to help our beautiful girl but we can all commit to helping the DIPG families of the future.
ANY donation that can aid research and development of new treatments for these children, who currently have NO options that are proven effective, is extremely worthwhile. These children are waiting, but they do not have the luxury of time. After decades of despair for parents only the investment to find a cure will provide the hope they need and give them a future.
EVERY 9 DAYS A CHILD IN THE UK IS DIAGNOSED WITH DIPG.
From LOSS there is HOPE and INSPIRATION.
1 CHILD DIES EVERY 3 DAYS FROM A BRAIN TUMOUR IN THE UK.
Charity Registration 1149400. (Reg Oct 2012)
This September is CHILDHOOD CANCER AWARENESS MONTH.
We are going 'GOLD' for all children touched by cancer during this September. Those who have fought, those who are not here anymore and those who are yet to be diagnosed.
Our 'Child Killer' DIPG awareness film is launching on September 13th the anniversary of Abbie's death, you can watch a short preview NOW by clicking on the link.
Please follow our social media feeds on Facebook and Twitter to support.
Collaborative DIPG study for CED (convection enhanced delivery) between Bristol and Dukes (US) co-funded - £75,000
With your amazing support we are pleased to announce funding of an exciting new DIPG project! Commencing very shortly, this is our first research piece co-funded with ‘Finlay’s Fighters’.
The collaborative project between the research team based here at the University of Bristol, and Professor Oren Becher at Duke University, North Carolina in the US involves the pre-clinical testing of agents in four molecular pathways. Success in CED will depend on matching the unparalleled world class technology in Bristol, with the most effective drugs. The identification of these drugs is the major focus of our research funding ‘Identifying novel drugs for the treatment of brainstem tumours by direct infusion into the brain'
DIPG Collaborative funding award $105,325
We have awarded a further grant to the DIPG Collaborative of $105,325 covering further study taking place with Dr Chris Jones at the Institute of Cancer Research, Sutton UK - 'The Evolutionary Dynamics of DIPG'
A full link to the paper can be read here ..
Dr Maria Vinci is also working on the project as part of Chris's team, she was also directly involved in the study published earlier this year in the journal , Nature Genetics 'Recurrent activating ACVR1/ALK2 mutations in diffuse intrinsic pontine glioma'.
Abbies Army were extremely proud to be cited by the Institute of Cancer Research for our previous funding award in 2014. Researchers published a paper in the journal 'Nature Genetics' which revealed a key genetic driver of the disease for the first time. The mutation of the ACVR1 gene was identified in around 25% of all DIPG cases and is promising because it throws open the option of a druggable target. Please read the full ICR release here on their website:
Abbie's Army has DONATED the following amounts for our chosen research centres...
Funding supplied to:
Institute of Cancer Research (ICR)
Bristol - Functional Neurosurgery Research Group
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Abbie's Army - Fight Kids Brain Cancer - © 2012: Charity Reg: 1149400