Abbie's Army has been formed by the family of Abbie Mifsud. She was a remarkable daughter and brave little girl who on September 13th 2011, at only 6 years of age lost her fight with an inoperable and incurable (DIPG) brain tumour.
This is the MOST FATAL form of childhood brain cancer growing in the brainstem making surgery impossible. The only standard UK treatment is 6 weeks of palliative radiotherapy for symptom respite. The median survival time is just 8-12 months. Abbie passed away only 5 months after her initial diagnosis. Can you imagine? the most fatal cancer with the least to be done?...
Our mission is to RAISE awareness and contribute much needed funds for children's DIPG brain tumour research which is currently woefully underfunded. DIPG affects 40 children a year in the UK with most funding coming from the parent led charities who have all lost a child to the disease. It may be too late to help our beautiful girl but we can all commit to helping the DIPG families of the future.
ANY donation that could aid research and the development of new treatments for these children, who currently have NONE that are proven effective, is extremely worthwhile. These children do not have time and they are waiting for science , only investment to find a cure will provide the hope they need and give them a future.
EVERY 9 DAYS A CHILD IN THE UK IS DIAGNOSED WITH DIPG.
From LOSS there is HOPE and INSPIRATION.
1 CHILD DIES EVERY 3 DAYS FROM A BRAIN TUMOUR IN THE UK.
Charity Registration 1149400. (Reg Oct 2012)
NEW!! - DIPG Collaborative funding award $105,325
We have just awarded a further grant to the DIPG Collaborative of $105,325 covering further study taking place with Dr Chris Jones at the Institute of Cancer Research, Sutton UK - 'The Evolutionary Dynamics of DIPG'
A full link to the paper can be read here ..
Pictured also is Dr Maria Vinci who is working on the project as part of Chris's team, she was also directly involved in the study published earlier this year in the jornal , Nature Genetics 'Recurrent activating ACVR1/ALK2 mutations in diffuse intrinsic pontine glioma'.
This amount is part of a wider funding round of $325,000 by the DIPG Collaborative, with other grants awarded to Sick Kids Hospital of Canada, the University of California – San Francisco, VU University Medical Center of Amsterdam.
The 3 Peaks Cycle Challenge COMPLETED!
The amazing team from Finlay's Fighters completed their challenge event. In four days they cycled 450 miles between the UK's tallest 3 peaks Snowdon, Scafell Pike and Ben Nevis..climbing them as they went.
The team have now raised over £26,000 for DIPG research - if you'd like to follow their adventures you can watch their journey with a short film on their Facebook page https://www.facebook.com/FinlaysThreePeaksChallenge
Scientists from The Institute of Cancer Research Chris Jones and our Abbies Army funded PhD Katy Taylor presented their findings 'The role of ACVR1 mutations in diffuse intrinsic pontine glioma (DIPG)' at ISPNO in Singapore on June 28th.
The DIPG Collaborative also held a sponsored session in front of the general audience of over 1,000 researchers to make our case for the homerun strategy and more research. This partnership pushing for these coalitions for DIPG kids WORLDWIDE truly can make BIG differences
Abbies Army were extremely proud to be cited earlier this year by the Institute of Cancer Research for our previous funding award. Researchers published a paper in the journal 'Nature Genetics' which revealed a key genetic driver of the disease for the first time. The mutation of the ACVR1 gene was identified in around 25% of all DIPG cases and is promising because it throws open the option of a druggable target. Please read the full ICR release here on their website:
At the end of 2013 the Collaborative have invested in $850,000 of new research grants selected by its Medical Advisory Council which allows for streamlined research, transparency and limits duplication. The combined effects of these funds are inspiring! Visit www.dipg.org for more information!
Abbie's Army Fundraising Totals Donated
Abbie's Army has raised the following amounts for our chosen research centres.... (Abbies Army funding to ICR and DIPG Collaborative)
MORE than £330,000 has be raised to date! THANK YOU ALL
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