What is DIPG?
Diffuse Intrinsic Pontine Glioma (DIPG) is a rare and aggressive brain tumor that primarily affects children, typically between the ages of 5 and 10. Located in the pons, a part of the brainstem that controls essential bodily functions such as breathing, heart rate, and motor skills, DIPG is notoriously difficult to treat due to its location and the way it spreads through the brain's supportive tissue.
The Challenge of DIPG
DIPG accounts for approximately 10-15% of all pediatric brain tumors, but it is responsible for nearly 80% of pediatric brain tumor deaths. The prognosis is dire, with the median survival rate being just 9-12 months after diagnosis. This devastating disease not only impacts the child diagnosed but also takes a heavy emotional toll on their families and loved ones.
Why Awareness Matters
Raising awareness about DIPG is crucial for several reasons:
Research Funding: Increased awareness can drive more funding towards research. DIPG has been underfunded compared to other cancers, and more resources are desperately needed to find effective treatments and, ultimately, a cure.
Education: Educating the public and medical community about DIPG can lead to earlier diagnoses and better understanding of the disease.
Support: Awareness brings communities together, providing support for affected families and fostering a network of hope and solidarity.
DIPG Awareness Day: 17th May
On 17th May, join Abbie's Army and observe DIPG Awareness Day. This day is dedicated to shining a light on the struggles faced by children with DIPG and their families, and to honor the memories of those who have lost their lives to this relentless disease. It is a day to reflect, educate, and take action.
How You Can Help
Your support can make a difference in the fight against DIPG. Here are some ways you can get involved:
Donate: by donating to Abbie's Army you can can accelerate the discovery of new treatments and a cure.
Spread the Word: Use your social media platforms to share information about DIPG and DIPG Awareness Day. The more people know about this disease, the stronger our collective effort will be. You can buy your yellow ribbons here.
Participate in Events: Join or organise local events such as walks, runs, or fundraisers to raise money and awareness for DIPG research.
Join Us in the Fight Against DIPG
This DIPG Awareness Day, let’s come together to make a difference. Whether through donations, sharing information, or participating in community events, every action counts. Together, we can support those affected by DIPG and contribute to the vital research needed to find a cure.
Thank you for your commitment to this cause. Together, we can bring hope to countless families and work towards a future where DIPG is no longer a life-threatening diagnosis.
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